About Us
We are a nonprofit organization, formed with the desire to shine a light on the FACE of the families within the Sickle Cell community, to bring awareness, form alliances, and to build educational and support systems.
Our Mission
The mission of the FACE of the Sickle Cell Community is to coordinate a coalition between national and local community organizations, medical educational institutions and professionals, and our influential African American community. We do this in the interest of promoting a more effective means of communication, resources, alternative treatment and research for a cure. We will create educational campaigns to increase awareness, thereby bringing the FACE of Sickle Cell to the forefront of representation in mainstream media.
Our Goal
We will utilize a national educational campaign to generate awareness, to raise the capital needed to provide support and resources to the sickle cell community, and to aid in the discovery and dissemination of knowledge pertaining to medical research. Our ultimate goal is to empower sickle cell patients and their families to take charge of their health and wellbeing, educate the trait carrier community, while finding a cure and ERADICATE sickle cell disease.
As part of this, the FACE will also initiate an educational campaign designed not only to inform, but also to build trust in the medical systems and dispel the fears felt by the African American community which hinders individuals from seeking medical treatment and participating in scientific research studies and blood and marrow donation.
Vision
To ensure that sickle cell disease will no longer remain unknown and misunderstood by the masses, including the ones suffering.
Our Purpose
Although Sickle Cell Disease (SCD) organizations made very important contributions to the passage of the recent sickle cell legislation, overall they have not been as successful in generating general public support and mainstream awareness as organizations for other diseases. FACE Foundation, Inc. aims to bridge that gap.
FACE Foundation, Inc. awareness and cause campaigns will be developed and aimed at reducing the stigma frequently associated with this chronic disease, by disseminating positive images and information about the disorder. Without this effort, those who suffer with Sickle Cell Diseases are left with the 50-year-old social stigma of "bad blood" and other negative and embarrassing images.
The FACE Foundation, Inc. will serve as a valuable resource of funding for other Sickle Cell organizations, research and trial studies. The FACE Foundation, Inc. will educate and empower patients to advocate for the best care available.
All of these efforts require financial and organizational resources, and in this arena, the Sickle Cell community has been left behind. Therefore, we are introducing the FACE Foundation, Inc. to shine the light on the FACE of the Sickle Cell Community.
Who We Are || Our History || Board of Directors || Advisory Board || Youth Advisory Board
