Bone Marrow/Stem Cell Transplant Resources
| # | Links |
|---|---|
| 1 |
National Marrow Donor Program (NMDP) Office of Patient Advocacy 3001 Broadway Street NE - Suite100 Minneapolis, MN 55413-1753 Phone: 800-627-7692 Office of Patient Advocacy: 888-999-6743 Fax: 612-627-5877 Email: patientinfo@nmdp.org Description: Information and counseling about bone marrow, stem cell, and cord blood transplants for patients, survivors, and families. |
| 2 |
American Society for Blood and Marrow Transplantation (ASBMT) 85 W Algonquin Road - Suite 550 Arlington Heights, IL 60005 Phone: 847-427-0224 Fax: 847-427-9656 Email: mail@asbmt.org Description: Provides guidelines for clinical centers, guidelines for training, and searchable texts of articles in Biology of Blood and Marrow Transplantation. |
| 3 |
Blood & Marrow Transplant Information Network 2310 Skokie Valley Rd - Suite 104 Highland Park, IL 60035 Phone: 847-433-3313 (Toll-Free: 888-597-7674) Fax: 847-433-4599 Email: help@bmtinfonet.org Description: Patient-friendly handbooks and a newsletter about transplantation. Links patients with survivors who can provide emotional support. Maintains an online Directory of Transplant Centers in the US and Canada, an online Directory of Drugs used during transplant, and an online Resource Directory. Offers attorney referrals for patients who have insurance disputes. Comprehensive website. |
| 4 |
BMT Support Online 5319 84th St Lubbock, TX 79242 Phone: 817-235-5885 Email: bmt-support@bmtsupport.org Description: Online support groups for patients, survivors, and caregivers. |
| 5 |
BMT-TALK Description: Electronic mailing list for patients, survivors and caregivers. To subscribe, click on the website link and follow the instructions for joining the list. |
| 6 |
Center for International Blood and Marrow Transplant Research (CIBMTR) 9200 W. Wisconsin Ave. - Suite C-5500 Milwaukee, WI 53226 Phone: 414-805-0700 Fax: 414-805-0714 Email: cibmtr@mcw.edu Description: Collects data on transplants performed at more than 450 facilities worldwide. Publications available about transplant applications and outcomes. |
| 7 |
GVHD: Graft Versus Host Disease Online Support Group Description: A moderated electronic mailing list for people who have graft-versus-host disease. To subscribe, click on the website link and follow instructions for subscribing. |
| 8 |
MEDLINEplus 8600 Rockville Pike Bethesda, MD 20894 Description: Comprehensive web site sponsored by the National Institutes of Health that includes more than 560 health topic pages, 150 interactive slide shows, drug information, health news, medical dictionaries and more. Also available in Spanish. |
| 9 |
National Bone Marrow Transplant Link (NBMTLink) 20411 W 12 Mile Road - Suite 108 Southfield, MI 48076 Phone: 248-358-1886 (Toll-Free: 800-546-5268) Fax: 248-358-1889 Email: info@nbmtlink.org Description: Links patients with survivors, offers publications, telephone support groups, and videos. |
| 10 |
National Institutes of Health Description: Information about clinical trials to treat a variety of diseases. |
| 11 |
National Family Caregivers Association (NFCA) 10400 Connecticut Avenue - Suite 500 Kensington, MD 20895-3944 Phone: 800-896-3650 Fax: 301-942-2302 Email: info@thefamilycaregiver.org Description: Education and support for people who care for the chronically ill, aged or disabled. |
| 12 |
Well Spouse Association 63 W Main Street - Suite H Freehold, NJ 07728 Phone: 732-577-8899 (Toll-Free: 800-838-0879) Fax: 732-577-8644 Email: info@wellspouse.org Description: Lists support groups by state for spouses caring for ill partners with a variety of diseases. |
Fundraising & Financial Aid |
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| 13 |
Air Charity Network 10 Richards Rd Kansas City, MO 64116 Phone: 866-569-9464 Fax: 816-421-2409 Email: request@angelflightcentral.org Description: Free air transportation for patients in financial need who must travel to receive medical treatment. |
| 14 |
Bone Marrow Foundation 30 E. End Avenue - Suite 1F New York, NY 10028 Phone: 212-838-3029 (Toll-Free: 800-365-1336) Fax: 212-223-0081 Email: theBMF@bonemarrow.org Description: Financial aid for some transplant-related expenses. Request for aid must be inititated by hospital affiliated with this organization. |
| 15 |
Children's Organ Transplant Association (COTA) 2501 W. Cota Drive Bloomington, IN 47403 Phone: 800-366-2682 Fax: 812-336-8885 Email: cota@cota.org Description: Fundraising assistance. |
| 16 |
Chronic Disease Fund 10880 John W. Elliott Drive - Suite 400 Frisco, TX 75034 Phone: 972- 712-0201 (Toll-Free Patient Information: 877- 968-7233) Email: info@cdfund.org Description: Financial assistance with pharmacy bills and co-pays for patients with myeloma, myelodysplasia, and rheumatoid arthritis. |
| 17 |
National Transplant Assistance Fund (NTAF) 150 N. Radner Chester Rd. - Suite F120 Radner, PA 19087 Phone: 800-642-8399 Fax: 610-535-6106 Email: NTAF@transplantfund.org Description: Fundraising assistance for transplant patients and catastrophic injury patients. |
| 18 |
Needy Meds 10880 John W. Elliott Drive - Suite 400 Frisco, TX 75034 Email: info@needymeds.com Description: Database of pharmaceutical companies who provide financial assistance for certain patients using their drugs |
| 19 |
Nielsen Organ Transplant Foundation 580 W Eighth Street - Suite 8000 Jacksonville, FL 32209 Phone: 904-244-9823 Fax: 904-244-9821 Email: NTAF@transplantfund.org Description: Financial aid for some Florida residents who need a transplant. |
| 20 |
Patient Access Network Foundation P.O. Box 221858 Charlotte, NC 28222 Phone: 866-316-7263 Fax: 866-316-7261 Email: contact@patientaccessnetwork.org Description: Financial aid. |
| 21 |
Patient Services Incorporated (PSI) P.O. Box 1602 Midlothian, VA 23113 Phone: 800-366-7741 Fax: 804-744-5407 Email: uneedpsi@uneedpsi.org Description: Helps those with chronic illnesses or conditions subsidize cost of health insurance premiums, prescriptions, and co-pays. Visit their website to view the many illnesses and conditions they help, and the types of assistance they provide. |
| 22 |
Rx Assist-Patient Assistance Programs P.O. Box 221858 Charlotte, NC 28222 Description: Database of pharmaceutical companies who provide financial assistance to certain patients using their drugs. |
